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Wednesday, 30 September 2015

Wordless-ish Wednesday

As I wrote lots in the last post, I'll just finish off the month with a number of photos taken over the last few weeks with just captions and no more blurb!

It's harvest time! Walnuts are dropping and we have quite a few
apples this year, so we've already picked a load of them and they
are a million times better than the rubbish apples sold in the shops!

Thanks to the rain we had some peaches this year -
they are wild and only small with quite tough skin,
but I like these tart white fleshed ones.
Yet they only stay good for about a week, even in the fridge.

The bare earth is where the potatoes were growing but even that is being
rapidly colonised by self seeding flowers - and since I took this photo
a few weeks back it is even more colourful.

Coriander lawn emerging, with a Phacelia lawn by the fence!
I have weeded out dozens of self seeded Borage.

Again the weather has been kind to my spinach which was
about to bolt but cooler damp weather has meant
there is absolutely tons of it to harvest.

A Small Heath butterfly on my Sedum - it's rare that I see these butterflies nectaring.

Plenty of butterflies this month with a Brimstone at the top,
Red Admiral left and Comma right.

I love the wings on these huge Violet Carpenter Bees (Xylocopa violacea).

I'm being kind again - here's another Cross Orb Weaver, this time with some dinner. Just click on the link here.

Smokebush 'Grace' is flowering again
thanks to the rain in August and Sept!

I want to get more Sedums like this 'Autumn Joy' in my
thyme bank next year, along with some more Stipa grasses
as they are all drought proof.

Out of focus, but does anyone know what this is?
It was in a packet of mixed seeds for pollinators, and keeps self seeding.

Greenfinch enjoying the sunflower seeds.

A load of huge fungi seen in a nearby orchard - one was as big as a dinner plate!

A walk we did a while back up high looking down over
the Couesnon valley - not sure what is what down there as
there's a river, a mill race and a trout pond.

The viewpoint was the shrine at the top and
I'm amazed I managed to get up there at all! :-)

To finish, Bertie in some silly and cute poses.

A tummy tickle would be nice.....

.....or maybe I'll just smell the roses Erigeron!

Hope everyone in Europe is enjoying the sun!

Friday, 25 September 2015

Rectal cancer one year on, seven months since APR surgery and pics from a few outings

It's five weeks since my last chemo and in fact that's it finished for now, unless I need more in the future. It was most kind of the hospital to bother to let me know that they'd decided that I didn't need the last treatment. The last time I mentioned it here on my blog I'd said that my last session was cancelled due to my platelet count being too low, and the hospital said they'd phone to reschedule, which never happened. I had to phone them to find this out! I had been wondering what was going on as they'd already given me an appt with the Oncologist for my apres chemo discussion and an appt for a Petscan had arrived in the post for 1st October. So I've now had 10 treatments out of the original 12 I was supposed to have.

I was left feeling very deflated as, not that I wanted the final chemo (who would?), I wanted to feel that elation of it being over, so I felt very cheated. I haven't been feeling that good lately so there is no feeling of cheer, more the beginnings of dread in case the Petscan finds anything untoward. And even if it is clear, now what? I guess I spend the rest of my life, however long that may be, hoping it doesn't come back. Yes I know this is not the 'right' attitude but I've been feeling more tired and lethargic of late than I was a couple of weeks after the last chemo.  I can't remember exact dates but it's been almost a year since the Proctologist said there was something dodgy up my bum and ordered my colonoscopy for 6 October 2014, so I'm probably feeling in a slump because I've gone through so much in the last year and now my body and I don't know what to do with ourselves. Dragging myself out of bed is a huge chore some days and in the last week I've had precisely two days where I didn't spend at least a good part of the day in bed, sleeping or reading. I now think it's possible I'm suffering depression without having realised it, as although I don't feel 'depressed' per se, there are other symptoms such as fatigue, insomnia, energy loss, change of mood, blah blah blah. It's probably not surprising. But a 'good day' helps hugely and yesterday afternoon after I'd written most of this was one of those good days, and I was left feeling that I had actually achieved something and slept really well for the first time in ages.

I have bad peripheral neuropathy in my feet and lower legs and it's now attacking my hands. It started as a slight numbness in my finger tips and holding things like knives and forks and using pressure causes discomfort. Now the tingling has started but it is very mild compared to what I feel in my feet. I have balance issues due to the numbness and tingling in my feet and wobble a lot, particularly when I first stand up. I've also started dropping things. This is due to the drug Oxaliplatin and this is the chronic neuropathy that I wasn't told about. I was warned in advance about the acute neuropathy which is generally a reaction to cold and which is worse straight after the chemo session and gradually wears off over a week or two. In my case it took about three weeks after my last chemo, but at the beginning it only took about a week. That was easily manageable by not touching cold things and wearing gloves to get things out of the fridge, and getting K to do anything involving cold water like washing vegetables. The chronic neuropathy builds up over time and gets worse after the chemo ends, and can take months before it starts to get better. That's the best case scenario. It could take a year, and for some people, it never goes away. It's one of the hardest things to deal with because pain killers don't help as it's not pain. But it's bloody horrible and is drives me nuts at times. The one thing which helps me block it out is to get out and enjoy what I enjoy doing - taking photos, watching wildlife, doing a bit of gardening - a little of this and I realise I have not been thinking about the unpleasant feelings so much. I've just got to push myself to get out and DO these things!

I'll update about the after-effects of my surgery at the end; however let's back up a few weeks to when I felt a bit better than I do now! First we went out just for a walk which wasn't a long one but on the side of a steep hill beside a river valley. I was expecting sloping paths but nope, I had to get up some really big concrete steps which was extremely hard work given my leg muscles had had very little work for months! Thankfully there was a middle level which was flat so we walked along that and then found a sloping path up to the higher level where there were some lovely views over the Couesnon valley. I did take a few photos but there are none of me so I'm not posting them here in this post. 

A few days later we went to the coast - the weather had perked up and it was lovely and sunny. The pictures will speak for themselves but we did a bit of walking around a couple of headlands. Not much in the way of butterflies and few wildflowers in bloom either (probably why!), which was a bit surprising given the rain we'd had back in August. I thought it would be blooming. Anyway it was a lovely day out and I got some more walking in, although I gave up on one of the tracks as it was rather up and down with rough rocky ground. I think I'll leave that kind of walking for another time when I'm feeling stronger!

As I hate most photos of me I've given most of these effects with names such as Aged, Antique, Retro and Grandma's Lemonade, which is about how I feel right now. Not lemonade, silly, but I'm well old enough to be a granny and feel more like great grandmother right now!

"Don't do it!"

Waiting to order moules frites by the seaside.

Not sure why I'm pulling a face at my chip....

Not sure why I'm wearing reading glasses to eat an ice cream.....

Aged Photo highlights the liver spots freckles.....

This was high tide and first time I've seen loads of seaweed like this, it wasn't
very nice and the water felt freezing, although there were people swimming.
I think it was the neuropathy in my feet which made it feel so cold.

Last week I had lunch out with some friends, including one who is not in the photo here. There aren't any photos of me in the restaurant so here's one of me afterwards at my friends' house. I'm sure they won't mind appearing in my blog. 

Dave, Janet and me in the middle,
with me looking uber pale compared to Dave with his suntan!

Strangely some days I perk up completely like a few days ago when the sun was shining so I asked Keith after lunch if we could go out for a walk, which he was of course happy to do. We spent several hours out spotting wasp spiders and watching butterflies feeding on blackberries and it was simple and just perfect. 

Post APR surgery seven months on

A little while ago I tried searching on the web to see how other people who had had the same surgery as me had got on months later. I particularly wanted to know how long it took them after the op before they could sit comfortably. I found very little information although it seemed everyone could sit comfortably a lot sooner than me, but bear in mind I had the set back of the non-abscess. There are plenty of forums out there but it seems that either people don't go back to post much after they have got better (and who can blame them for wanting to forget about it all), or worse, I guess in some cases people didn't make it. There are a few medical sites which give a decent amount of info about the things that can go wrong after this kind of surgery - most of which I was not told about by my medical team. So I decided I would document how it's going for me. 

A surprising thing I found during this research was that according to some UK and US sites they do not recommend sitting on doughnut cushions after the op. Well obviously that isn't the case in France. I'm still sitting on them. I did try not to after I'd read that apparently it can cause more pain and hinder healing (without explaining why), but after a week I had more pain and was back on the codeine again and went back to my doughnuts. One site said that the perineal wound was different from other surgical wounds as it has to heal from the inside as well as the outside. That I don't understand at all as surely all wounds that cut deeply into your body need to heal all the way through the cut area, such as my belly wound which presumably went through my lower abdominal muscles. I get so frustrated at info given that doesn't explain WHY! And in case you were wondering, I take my doughnut cushions with me to restaurants! They go everywhere with me.....

For months since the non-abscess started healing my butt area has felt very tight - I guess this was partly the healing process but also I have less skin there as much has been chopped out and I have less depth of skin in my butt crack which feels really weird, so I always have this rather irrational fear that if I bend over or squat, my perineal wound is going to split open! I saw my stoma nurse recently and she suggested using a moisturising cream to massage into the scar and this seems to be helping a little. Or maybe it's just time helping/healing, or both. I also have a numb patch next to the scar which I've had ever since they uncoupled me from the epidural machine. And other patches by the scar which hurt when I touch them. Sneezing is not too bad but even the slightest cough hurts my no longer there anal/rectal area really badly, so I live in dread of catching a cold as I don't know what I'd do if I had a real cough. 

As for my belly wound, that one healed up nicely; the scar looks neat and tidy and is more white now than pink and nice and smooth. I get a few twinges now and again. However I'm very aware of the possibility of getting a parastomal hernia. Again nobody said a word to me about this in the hospital, yet this is a common occurence and most people who do get hernias around their stomas get them in the first year after surgery. I do have a slight lump which concerns me but the stoma nurse said that if it was the beginning of a hernia, it was very small. She said to ask the Petscan doctor to check it out. I am being very sensible and always wear my corset when doing any work in the garden and rarely lift anything heavy. Not that I can do much garden work as I end up with a sore butt area!

Sometimes when I have been lying down and get up, I have to wait a little while bent over whilst I have this odd feeling that my lower body is rearranging itself in the area that was operated on and can't stand up straight and have to let this weird pain pass. It doesn't take long but I'm often walking slowly like an old lady for a few minutes before everything eases up and I get back to normal walking.

I have no problems dealing with my poo bag and it's probably the least of my worries, although of course it's much easier to deal with at home and I've yet to have to change or empty it in a public loo or anywhere other than home. I've had some pancaking issues (google it!) and wouldn't want that to happen whilst out and not near a loo. Clothes are a bit of a problem as most of my trousers and jeans are low(ish) waisted and I could really do with them being up around my waist for comfort, but who makes clothes with high waists any more? To hide the top of the bag when it is peeking above my trousers I wear a pregnancy belly band - this tip I got off the net. It helps to smooth out the top of the bag and then you can wear a tightish t-shirt without an outline showing. But I'm still most comfortable in stretch dance type pants as they seem more forgiving on my still sore bum, so that's often what I wear at home.

As for other issues - well I've seen my Urologist a number of times to try to work out why I have bladder problems and have had several tests which could be embarassing if I had any shame left any more, but I have none. Sticking a camera or a catheter up my urethra is no big deal any more! I was peeing too frequently and not seeming to pass enough and it never feels 'normal'. Apparently I have permanent nerve damage and there's not a lot they can do (I tried pills for an overactive bladder but it seemed to make it worse so I gave that up). But I've found it is getting a bit better as time goes by and this is something I can live with.

There are other issues caused by radiotherapy and surgery affecting 'ladies' parts', radiotherapy often inducing premature menopause in younger women - I already have reached menopause but radiotherapy does some pretty awful things to that area. I won't go into details but I'm trying some medication to see if that will help. Again nobody told me any of this and I've had to self diagnose from info given on the internet.  

I think that's about summed it all up. Naively, partly because I had not been given any info about after the op and what to expect, I had thought I'd be back to normal by now, as normal as it gets after an op like this, of course. Now I know it could take years before all these things settle down.

And of course, it's not all about me either. There are two of us here who are going through this crap. Keith went to the periodontist earlier this week to get his teeth cleaned. I had to cancel my appointment because I wasn't sure when the chemo was going to happen and also it wasn't a good idea if my platelet count was still low as it meant I could bleed more easily. K explained to the dentist why I had cancelled. She then examined him and said his gums had receded. Apparently this can be caused by stress and fatigue! There was no need to ask him if he'd been suffering stress...... 

This isn't meant to be a whinge but more to help anyone reading this who also has been through the same or similar surgery and is wondering how others are coping. If anyone would like to get in touch to ask questions privately or just to talk, you can contact me using the 'Contact Me' form on the right hand column up near the top. I'd be happy to hear from you. 

Friday, 18 September 2015

Moths end of August and early September

Here are some of the moths from three more moth trapping sessions. It's a bit wet again so I'll have to time it right to do it next time. No more big showy ones but I've been just as happy with some of the smaller moths, as some are so pretty you really need to see them up close to appreciate their beauty. I was really pleased to find this Angle Shades though which is a medium sized moth - that was one I was really hoping to see. 

30th August 2015 - location out in the open near the house

Angle Shades (Phlogophora meticulosa).

Angle Shades (Phlogophora meticulosa).

Angle Shades (Phlogophora meticulosa).

Brimstone (Opisthograptis luteolata).

Six-striped Rustic (Xestia sexstrigata).

The Vestal (Rhodometra sacraria).
This is a migrant species to the UK.

Orange Swift (Triodia sylvina).

Heart and Dart (Agrotis exclamationis).

7th September 2015 - location amongst trees not far from my pond

Dewick's Plusia (Macdunnoughia confusa).
This one is a vagrant to Britain.

Cloaked Carpet (Euphyia biangulata).

Four-spotted Footman, male (Lithosia quadra).
It's the female which has the spots.

Light Emerald (Campaea margaritaria).

11th September 2015 - location under old apple tree near some flower beds

I think this is a September Thorn (Ennomos erosaria).

Maiden's Blush (Cyclophora punctaria).

Green Carpet (Colostygia pectinataria).

There's another funny story attached to this photo regarding critters crawling around inside my clothes. At first I thought this was a moth with long antennae but then remembered some people mentioning getting Caddis flies in their traps. Well after putting the moths and Caddis flies out once dusk fell, I came inside and slumped on the sofa with the cats. I felt something tickling my thigh so had a bit of a feel and a scratch through my pocket. Nope, couldn't feel anything so it must have been my imagination..... next thing there was something definitely tickling me in the groin area! Freaking slightly I unzipped my trousers and out hopped a Caddis fly! I guess it climbed up my trouser leg after I'd released it, daft thing. More sighs of relief that it was not a bitey, stingey critter!

A Caddis Fly, species unknown.

This next lot are four different moths, but are they all the same species? I am Uncertain (hoho) as to whether they are The Uncertain moth, Vine's Rustic or Rustic. They all look identical to me apart from slight colour variations. I found this article which helps to tell the difference between the three but I feel a bit brain dead when it comes to trying to tell almost similar species apart, so I'll just put a link here for when I feel like coming back to it to try again.

I have some more 'I don't have a clues' which I'll post later on when I'm sure I'll have a few more to add to the list. Or who knows, I may manage to ID them. You never know! :-)

Friday, 11 September 2015

It's starting to feel a bit like autumn

I'm one of those people who refuse to accept that it is autumn before the due date, i.e. the autumn equinox. However all the signs are appearing, from the cooler mornings with dewy grass showing up tiny webs which I try not to step on, and larger orb webs visible when I let the chickens out early in the morning. After the rain some shroomy things have been appearing, though not like the amounts we'll get later on in real autumn. Robins seem to have returned; although I don't think they go away, they always seem absent during the summer and then appear to come back because they start singing when the others birds stop, and continue singing all through the winter. Thank goodness for Robins! The late summer butterflies are back and lovely and colourful, ditto the late summer damselflies and dragonflies I see here. And we are eating our pears and it won't be long before the first apples are ready - they are already looking plump and red on our best eating apple trees. 

Gathering pears - we have two more trees
but there are not many on them.

Looking for Wasp Spiders at home with a helper.
We didn't find any here.

The bit of lawn that was brownest is greening up nicely,
although half of that green is weeds!
Some bits have had to be mown already.

A fat fungi I've never seen before -
the stalk is more than an inch in diameter.

About four feet away this little one came up,
which after three days is now looking like the one above.
Any ideas anyone?

This is a nymph of the Striped Shield Bug (Graphosoma lineatum),
the red and black stripey bug.

This true bug I have no idea! All I know is that it's not the
Green Shield Bug (Palomena prasina) cos I found one in the garden
and checked out its underside..... I love the colours, whatever this is!
And before you ask, I have no idea why I did not take
a photo of its top side..... hmmm!

Back to those bug eggs again - this is the best I could do.
They do look like tiny bugs emerging, but as the eggs are 1mm wide,
I really can't do any better than this.

On the M. W. Walk, we came across this beautiful dragonfly.
It's a Migrant Hawker (Aeshna mixta) and probably a young male,
as the mature males tend to have a blue/brown abdomen.

I had to take a few photos as I've never seen this dragonfly before so here it is again.....
Migrant Hawker (Aeshna mixta)

At home the Western Willow Spreadwings (Lestes viridis, or Chalcolestes viridis) have appeared.
They are always happy to perch on vegetation near the pond.

Western Willow Spreadwing (Lestes viridis, or Chalcolestes viridis).

Another Harvestman, quite different from the one I showed last post.
I've never delved into Harvestman identification so I'm hoping JJ might know! :-)

Sawfly larvae on a small Alder tree by the pond.
This one in the foreground has just had a moult, and you can see the
discarded skin under the first three true legs on the twig.
Its head will darken up like the other one after a few hours.

On the same tree I found this tussock moth larva. It looks very like a Vapourer Moth (Orgyia antiqua) but the tail end is a bit different and not the normal dark colour. However I can't find any other European tussock moth whose caterpillar looks remotely like this, so maybe it isn't a final instar one??

Vapourer Moth (Orgyia antiqua) caterpillar - I think!

Vapourer moth (Orgyia antiqua) caterpillar - I think!

This moth was on a stinging nettle by the orchard -
it doesn't have a common name, only Latin, Carcina quercana.

Butterflies gorging on rotting plums - Red Admiral, Peacock, Comma and in the pic bottom left,
there are two Commas and a Red Admiral. I'm too lazy to add Latin names but you
European peeps know these butterflies well!

I'm adding a final photo but I'll keep it hidden from those who don't like spiders so you will have to click to see it. I had been doing a bit of gardening and whilst wandering around, felt something tickling my shoulder. I put my hand inside my T-shirt and felt something furry! Eeeks! I freaked thinking it might be a wasp or a bee, as I react badly to wasp stings and don't fancy being stung by anything, particularly right now; lord knows what would happen with my buggered immune system. So I hurriedly stripped off down to bra in the garden (not overlooked thank goodness!), turned my T-shirt inside out, and was hugely relieved to find it was 'only' a large Cross Orb Weaver! Phew. :-) Pic here.

After a lovely few days it looks like cooler wet weather is coming back again but at least I got out away from the house twice this week, and I'm meeting up with friends for lunch next week and desperately need to get a hair cut too (preferably before seeing friends...). So many things to do whilst I've got a bit of energy. Still not heard from the hospital as to when my last chemo will be, but quite frankly right now I don't care!